New Parents
Welcome and congratulations! Down Syndrome Indiana has various resources for our new parents! As always, for specific questions, support, and connection feel welcome to reach out directly at Garner@dsindiana.org!
Start here for general information!
Looking for a Down Syndrome Clinic in Indiana for your new baby? Click here!
Looking for resources from speech therapists to healthcare information? Visit here!
We are happy to provide a variety of webinars for new parents to watch in the convenience of your own home! Click here to explore our webinar list!
Current Parents
Down Syndrome Indiana serves individuals with Down syndrome and their families throughout their lifespan! We have programs, support, and engagement opportunities throughout the year for all ages!
For general current parent support and resources, click here!
Ask the expert! We have a variety of expert answers to questions that range from Medicaid waiver application questions to Sleep Apnea! Visit here to explore the topics!
For specific information on Aging and Down Syndrome, click here!
For Educators
For several years, Down Syndrome Indiana has been committed to supporting educators, from offering free educator presentations to providing free support and resources!
For Health Professionals
Down Syndrome Indiana has been offering medical outreach and free support to health professionals in Indiana for over 25 years! In addition to our free medical outreach presentations and free new parent packets full of important resources and information, we offer various resources for health professionals!
Click here to learn more about our health professional resources!
For Grandparents
Being a grandparent encompasses many different roles. You serve as a support person for your child and grandchildren. We hope that the resources we have can help you navigate various topics involving Down syndrome and assist in answering questions you may have.
Webinar Library
We have a variety of webinar topics available 24/7 on our website, from new parent webinars to webinars on therapy and future planning!
Webinars for New Parents
New Parent Series
DSI New Parent Resources – https://youtu.be/G_AHUhoof5Y
Central Indiana’s First Steps Program – https://youtu.be/PburnesM33E
Choosing an Inclusive Childcare Program – https://www.youtube.com/watch?v=HRVF-xXmHv8
The Importance of High Expectations for Children with Disabilities – https://youtu.be/6fvu6H0NtlY
What Siblings Want You To Know About Down syndrome – https://youtu.be/955LsEXyicQ
Down Syndrome Healthcare Guidance New and Improved by Dr Celanie Christensen – https://youtu.be/le-TRq9F8fM
Webinars for Current Parents
Therapy
Physical Therapy, When is It Needed? By Kathy Martin – https://youtu.be/ps6mgJnFrHA
OT Throughout Life by Taylor McGann, OTR/L, MS, OTD – https://youtu.be/AAIuEJdrcf0
Aging & Down syndrome
Down syndrome and Aging by Dr. Elizabeth Head – https://youtu.be/F2KCLuLFF0c
Education
Culture of Down Syndrome by Carla Butorac – https://youtu.be/r6rsrly4k0M
Erskine Green Training Institute by Fenway Park – https://youtu.be/9KLIhKUiLlc
The Importance of High Expectations for Families of Children with Disabilities: What Does the Research Say and What Should We Do? by Katie Herron – https://youtu.be/iCrP3SdTYbM
Skill Building Across the Lifespan by Jade Presnell – https://youtu.be/cd2aFq6cBfU
What is a Special Education Parent Advisory Committee (SEPAC)? – https://youtu.be/u2j8mM_eHQU
Awareness
Making an Awareness Presentation by Stephanie Garner – https://youtu.be/HFLGSFoOLhI
World Down Syndrome Day Student Presentation by Stephanie and Lily Garner – https://youtu.be/i_sPQGuSxBo
Research
What’s Happening in the Research World of Down syndrome? By Dr. Stephanie Sherman- https://youtu.be/GFDsS_C_xTM
Treatment in Trisomy 21: a scientist’s perspective by Dr. Randall Roper – https://youtu.be/jd_uv9w8sOQ
Aging in People with Down syndrome (conference presentation) by Dr. Elizabeth Head –https://www.youtube.com/watch?v=OdGI-avK4FA
Research: Why Should I Get Involved? By Lisa Kaeser – https://youtu.be/EjqV6C16g-o
Potential of Video Games for Learning & Memory by Kelsey Prena, Ph.D., – https://youtu.be/8d3WmfibWBc
Characterizing Development in Down Syndrome: From Infancy through Adolescence by Drs. Marie Channell & Laura Hahn – https://youtu.be/nnDNNudp0FE
The benefit of orthoses for young children with Down syndrome by Dr. Kathy Martin, PT, DHSc, – https://www.youtube.com/watch?v=oPLAHSBv9os
Live Laugh Dance – Connecting Mind, Body and Soul by Dr. Rachel Swinford, PhD – https://youtu.be/pTr6DC3BeBg
Sexuality
Puberty and Sexual Development – https://youtu.be/-k8R1Ga1BgM
Technology
Accessibility Features on Devices by Janna Carney Moran – https://www.youtube.com/watch?v=YAU8mevi2-g&feature=youtu.be
Assistive Technology Webinar by Josh Anderson – https://youtu.be/H4zX4qv3_Lc
Behavior Management
ABA – Not just for Autism!: Practical use of ABA for Individuals with Down syndrome by Amanda Borosh – https://youtu.be/r9GHXbwqKcw
Common Classroom Behaviors and Helpful Supports by Alysia Fuhrmann- https://youtu.be/3txgGizKnuk
Behavior Management/Basics of ABA by Alysia Fuhrmann, BCBA – https://youtu.be/i7TvFg76yFM (Spanish Version: https://youtu.be/yD05nLe5bfs)
Stress Management and How to Uncover the ‘Meaning’ That Fuels Behavioral Challenges by Mary Ciccarelli, MD – https://youtu.be/7ROGzs7oM0s (Spanish Version – https://youtu.be/be6OI3PPSsw)
Care Giver Supports
Supporting Caregivers by Megan Peck, MEd, MSW, LCSW – https://youtu.be/xw5RXYreYtQ (Spanish Version – https://youtu.be/qFpDSBdhbqg)
Financial
ABLE Accounts & Guardianship by Gordon Homes – https://youtu.be/MSlwtUOwDxs
Creating Financial Security for a Loved One with Special Needs by James Munder – https://youtu.be/FWpIE42o77M
Financial Wellness by Gordon Homes – https://youtu.be/oYLUrbQomVI
Government Benefits Workshop by Gordon Homes – https://youtu.be/FMKK1ODGA8k
How to Plan for Future Independence by Phil Clark – https://youtu.be/uBFRIZTs0K4
Special Needs Trusts – First vs Third Party, Pooled & Miller Trusts by Gordon Home – https://youtu.be/66m9lWSrhao
The Basics of Special Needs Trusts by Sarah Geis – https://youtu.be/BXYkIxelS30
Guardianship / Future Planning
What to Know About Supported-decision Making and Other Options for Adulthood by Melissa Keyes – https://youtu.be/g8ve7iRSlxE
What to Know About Supported Decision-Making and Other Options by Melissa Keyes – https://youtu.be/7VQqvBl0Uco
Setting the Stage for the Future by Heather Dane – https://youtu.be/G5bdozQRmbg
Restoring Dignity and Self-Determination by Charting the LifeCourse by Karly Sciortino-Poulter – https://youtu.be/KnD48Dl3bNQ
General Resources
Moving to Indiana by Jennifer Akers – https://youtu.be/H-kdJKy91QU
Medicaid Waivers and Life Course Framework by Karly Sciortino-Poulter – https://youtu.be/dipceuhfEjw
Mental Health
Depression & Down syndrome: How Families Can Help by Lani Jones, PsyD – https://youtu.be/TnqykZm16aQ (Spanish Version – https://youtu.be/J4LDCbVnqF0)
Trouble with Transitions: When Mood and Anxiety Symptoms Get in the Way by Dr. Cassie Karlsson – https://youtu.be/pAKhYjyHC8g
Webinars for Professionals
Medical Outreach
Medical Outreach Webinar by DSI – https://youtu.be/xLOL4hvC-kk
Policy
How a bill becomes a law: https://youtu.be/6wPAVFR8uWo