Policy and Advocacy

Down Syndrome Advocacy Board

We are excited to announce the formation of The Down Syndrome Advocacy Board! This board will be composed of individuals with Down syndrome interested in policy and advocacy, and public speaking!

Join the Down Syndrome Advocacy Board

Interested in getting involved?

Join a Committee

We encourage caregivers, supporters, and individuals with Down syndrome to use their voice and tell us what matters to them! We have a specific self advocates committee, as well as meeting for caregivers and passionate community advocates.


There are several ways to use your voice in your own community, at the state level, and the national level. We offer opportunities for community events at the State Capitol Building, as well as offer mentorship on how to advocate best for your loved one.

Meeting Matters

Find your legislator and make a connection! Down Syndrome Indiana is looking for one (or more) volunteer in each of Indiana’s 100 House of Representative districts for the state of Indiana. We can help walk you through meetings, provide supplies, and attend meetings with you!

Interested in getting more involved with policy? Reach out to our Executive Director, Macy Pohl, at Macy@dsindiana.org or fill out the form below!

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