Aging & Down syndrome

Dementia and Alzheimer’s Disease

Dementia and Alzheimer’s are growing problems in the Down syndrome Community. Many families and caregivers are struggling to understand what dementia looks like in individuals with Down syndrome, how to take care of an individual with Down syndrome, and where to find resources. Drew Flynn, an occupational Therapy Student from the University of Indianapolis, led a three-part Dementia and Down Syndrome Training Series. The series aimed to share information so families and caregivers could better understand dementia and Down syndrome. Below are the presentations of the three-part series, along with links to resources from the presentations.

Part 1

Part 2

Part 3

New NDSS Publication

NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the Alzheimer’s Association, recently published End-Of-Life and Down Syndrome, as a companion to Aging and Down Syndrome: A Health and Well-Being Guidebook. NDSS is committed to continuing to support the Down syndrome community through all aspects of life, including how we prepare for end-of-life. Through the information in this guidebook, readers will recognize and understand the reasons that planning for your own future and having a backup plan for care of your loved one(s) with Down syndrome are so important. Find this publication and more at

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