Dementia and Alzheimer’s Disease
Alzheimer’s Disease is a growing concern in the Down syndrome community. Many families and caregivers are struggling to understand what Alzheimer’s Disease looks like in individuals with Down syndrome, how to take care of an individual with Down syndrome during late adulthood, and where to find resources and information.
On this page, you will find a three-part training series addressing Dementia and Down syndrome, useful documents and resources addressing aging, and research opportunities and engagement.
Training Series
Drew Flynn, an occupational Therapy Student from the University of Indianapolis, led a three-part Dementia and Down Syndrome Training Series. The series aimed to share information so families and caregivers could better understand Alzheimer’s and Down syndrome. Below are the presentations of the three-part series, along with links to resources from the presentations.
Part 1
Part 2
Part 3
Helpful Resources and Documents
NDSS Publication
NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the Alzheimer’s Association, recently published End-Of-Life and Down Syndrome, as a companion to Aging and Down Syndrome: A Health and Well-Being Guidebook. NDSS is committed to continuing to support the Down syndrome community through all aspects of life, including how we prepare for end-of-life. Through the information in this guidebook, readers will recognize and understand the reasons that planning for your own future and having a backup plan for care of your loved one(s) with Down syndrome are so important. Find this publication and more at https://ndss.org/publications.
Research Opportunities
The Global Down Syndrome Foundation is dedicated to research around Down syndrome and Alzheimer’s Disease.
To learn more about the research being done on Down syndrome and Alzheimer’s, visit https://www.globaldownsyndrome.org/research-medical-care/alzheimers-disease-down-syndrome-research-grants/
To learn more about open study opportunities, email info@globaldownsyndrome.org.