Covid -19 and Down syndrome Resources

Down Syndrome Indiana’s number one concern is the safety and health of the families we serve. Down Syndrome Indiana is committed to following the recommendations of health officials.

We are also committed to serving you and ensuring the continuity of operations of the organization. DSI will continue to operate during this time. Down Syndrome Indiana staff will continue to answer phones and respond to emails though most of us will be doing so remotely. We are still here for you.

Covid-19 Resources

COVID-19: Preparing for an Emergency

As the pandemic has worsened, a number of adults with disabilities and their families have been concerned that 1) health care providers could deny treatment such as ventilators to people with significant disabilities and medical histories, and 2) concerned that in the current climate of zero visitors in hospitals for adults, that someone who is nonverbal and/or developmentally delayed could be hospitalized without the comfort and communication provided by their parent or other primary caregiver.

These tools can help you prepare to cope with ER visits and hospitalizations calmly and effectively:  Read more at

Live Question and Answer Session with Dr. Joshua Green

Down Syndrome Indiana presents a webinar with Dr. Joshua Greene about what we know about how COVID-19 may impact individuals with Down syndrome followed by a question and answer session. Available at: 

Q&A on COVID-19 and Down Syndrome

Down Syndrome Medical Interest Group-USA, Global Down Syndrome Foundation, Lumind IDSC, National Down Syndrome Congress, and National Task Group on Intellectual Disabilities and Dementia Practices have developed a Q&A on COVID-19 and Down syndrome:

Q&A on COVID-19 and Down Syndrome – Abbreviated Version

Q&A on COVID-19 and Down Syndrome – Expanded Version

DSI Ask The Expert COVID-19

Check out DSI’s newest Ask The Expert page on COVID-19 by Dr. Mary Ciccarelli with Center for Youth and Adults with Conditions of Childhood and Indiana University School of Medicine. 

Indiana State Department of Health Updates

You can sign up for direct COVID-19 updates from the Indiana State Department of Health at: Their website is updated at 10:00am daily.

#T21COVID Hashtag on Social Media

Along with other Down syndrome organizations, Down Syndrome Indiana has adopted the hashtag #T21COVID on social media (Facebook, Instagram, LinkedIn and Twitter) so that families can easily identify information on COVID-19 and Down syndrome.


LuMind IDSC Down Syndrome Foundation has a very informative video and additional resources available at:

Social Stories

Knowing that people everywhere are concerned, the DS medical professionals are in depths of discussion about heightened risks of COVID 19 for our community. With our world in quarantine and change in schedules, children experience many additional issues including exacerbated behaviors and activity.  To help children understand, this graphic might help caregivers address anxiety and help with understanding.

Corona Virus KIDS English 3.2020

Corona Virus KIDS Spanish 3.2020

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