Parents and Caregivers want to be Protected Also

People with Down syndrome, ages 16 and over are able to receive the Covid-19 vaccine once they receive their unique link to register for the vaccine but let’s keep the advocacy going for parents and direct caregivers.

If you’d like to see parents and direct caregivers of children with Ds added to the vaccine eligible list, please consider contacting the following people with your request:

• Governor Eric Holcomb: this website provides a phone number, address, and the opportunity to send the governor an email-

• Dr. Kristina Box, Indiana State Health Commissioner:
Phone: 317-233-7400

• Dr. Lindsay Weaver, Chief Health Officer:
Phone: 317-233-7164

If writing a letter/email, your personal story as to why this cause is important to your family should be the focus, but here are some statistics and other information you can include to help bolster your argument in support of the importance of parents and caregivers receiving the vaccine:

• “People with IDD (Intellectual and Developmental Disabilities) had a higher prevalence of specific comorbidities associated with poorer Covid-19 outcomes” (Turk et al, 2020).
• “People with intellectual disabilities and developmental disorders are three times more likely to die of Covid-19, compared with patients without the conditions” (Rabin, 2020).
• “In individuals with Down syndrome specifically, there is an estimated four-fold increase in risk for COVID related hospitalization and ten-fold increase in COVID-19 related death” (AADMD, 2020).
• The American Academy of Developmental Medicine and Dentistry, alongside national disability and Down syndrome organizations, have issued a joint statement advocating for vaccine allocation and distribution frameworks to specifically include people with ID/DD and their caregivers as a high priority given their disproportionately high level of risk.
• The majority of people with developmental disabilities live in the home of a parent/guardian. For these individuals, family members are critical support workers, and therefore, their health and safety must be prioritized.
• An estimated 7000 people with Ds live in Indiana, so at the very highest, that would only be 14,000 vaccines administered across the entire state.

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